How it works
After fundraising through MobilityFunder™ for two chairs for CCSD students previously, a friend reached out hoping we could tell her about the chairs for a client she had who was struggling with carrying her daughter everywhere, causing significant back problems. We want to do more than that... so here goes round THREE! Help us help Isabella! We have some of the funding left from the Fox5 Surprise Squad, but not enough. Here is Isabella's story, from her Mom Vivian...
Isabella was born with a rare genetic disorder called Osteogenesis Imperfecta ( Brittle bones). She got diagnosed at 4 months old when she had her first fracture of 5 ribs. Since that time our life changed completely and the journey started. We are always afraid and cautious; we have to watch her all the time, any fall or wrong movement will cause a fracture.
She has 50 + fractures, legs, arms, ribs, femurs, fingers, hands and feet. 10+ surgeries. And it doesn't stop here she needs more surgeries to place rods in her tibias and her spine. She is developing a sever scoliosis. Isabella at risk of having micro fracture that happens for no reason or no injury. Her case is so tricky.
The past 2 years, her femurs kept breaking. Every time she has to be in a full body cast. It is no joke. They placed rods in her femurs here in Vegas but they weren't helping because they were too small. We had to take her to Shriners California to operate on her. She had her femurs surgery last year, they cut the femurs bones remove some of the dead bones and placed bigger rods. Her surgery lasted 11 hours with severe bleeding. They had to transfer blood. It was so scary.
She goes to the hospital every 3 months to get infusions for her bones.
She went to school with her body cast many months stuck on the wheelchair. Sometimes she tells me I hate my life. Not being able to enjoy life and go places like all the kids.
I always feel so bad for her not being able to enjoy her childhood and be like kids her age. I love to take her everywhere. I carry her on my back everywhere, the beach, the mountains, hiking trails.... etc.
It has been so hard on all of us, we are always limited on the places we can go. Her siblings are always complaining because we can't do every activity they want.
She loves the nature, enjoys the beach. She lives to be outside. Now since she is getting older and heavier I injured my back, and getting bad scoliosis, so she can't enjoy nature and the outside anymore."
This broke my heart. PLEASE help Ryan and I get Isabella a chair. Mom said she loves the snow and sand so we also want to get her the skis to easily push the chair through the snow. We will take care of purchasing the beach wheels on our end.
Contributors (0)
contributed
$150
Anna Taylor
1 month agocontributed
$300
Anonymous
1 month agocontributed
$10
Anna Taylor
1 month ago
contributed
$1050
